Our Programs

Founded in 1979, the National Down Syndrome Society (NDSS) supports and advocates for the Down syndrome community by focusing on three key areas of programming: Resources & Support, Policy & Advocacy, and Community Engagement. Within these focus areas, NDSS engages in various activities, events, and programs on topics that are critical to our community, such as federal and state advocacy and public policy, health and wellness, education, and employment. NDSS creates resources to support individuals with Down syndrome, their families, and caregivers across the lifespan and hosts awareness and engagement events throughout the country including the National Buddy Walk® Program.

NDSS is committed to providing individuals with Down syndrome, their families, caregivers, and the public with comprehensive information across the lifespan, from birth to end of life. Through events, webinars, videos, publications, and our website, NDSS provides free resources on a variety of topics including information for new and expectant parents, health and wellness, education, and employment. Through our helpline and info email, NDSS answers thousands of requests for support each year. Our staff responds to questions and connects parents, professionals, self-advocates, and others with referrals, including to our network of more than 300 local Down syndrome organizations.